Proof to Convince a Non-Believer

I must say, the fact that I feel the need to write this post after having Fibromyalgia for nine years bothers me, A LOT. In 2012, Fibro was recognized as a permanent disability and in 2015, it was recognized by Healthcare providers. Yet, in my ten month journey of writing this blog, I have met hundreds of women and men whose doctors, family, loved ones and employers still don’t believe their condition and think they are “lazy, crazy, making it up, or frankly, just full of crap.”

So, for those of you that are going through this, first and foremost, I am here for you. Second, I’ve laid out some things you can do to get proof of your condition and share with those non-believers who are making you feel worse than you already feel. Let’s put an end to this once and for all.

 

  1. A good rheumatologist is a MUST
  2. Your GOOD rheumatologist will be able to start your Fibromyalgia diagnosis by testing you with the “tender point” test 
  3. Bring your closest loved one(s) INTO the exam room so they can see your pain (literally), while the doctor pokes and prods at the most excruciating parts of your body.
  4. Yes, you will have blood drawn and yes, you will be bruised for a few days, it’s worth it. What is the doc looking for? Vitamin deficienciesSjorens, thyroid issues, diabetes and the rest of a large work up of labs.
  5. When you go back to the doc for results, again, bring your loved one into the exam room. He/She is now going to hear from a third party that there is an additional way to prove that you have Fibromyalgia.
  6. Please read this article by the founder of the Spoon Theory. Why? Because that’s what you are now, a “spoonie.”
  7. Print this article and put it on your fridge. 25 Things People Without Fibromyalgia Should Know About People With Fibromyalgia
  8. Though Fibromyalgia is an invisible disability, there are ways to see it. Take pictures of yourself on your best days and worst days and ask the non-believer if they can see the difference in your pain levels
 
 

Even after all of this, some people just won’t accept that Fibro is real. Instead of tiring ourselves out trying to convince them, we need to keep the focus on taking good care of ourselves.

Lucky for us, there’s no shortage of Spoonie support groups. Social media is an amazing asset when you need some positive vibes or questions answered. Remember, you are never alone, there’s an army of Fibro warriors just waiting for you to reach out!

Puja Rios