Shout About Pain 101: Period Problems

Comfy clothes were planned out for the two weeks, the pantry stocked with junk food, and we braced for sleepless and pain-filled nights. If I had to travel during these two weeks, my husband and I would go into a worried tailspin knowing the additional pain I was about to experience.

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How Your Meds Can Save a Life

My pills are tiny little heroes that help me live a normal life, and now, they can be tiny little heroes to others in need. Claus Moeldrup, a former professor of social pharmacy, has created a way to generate actual cash, just for taking our meds. Not only that but the more pills and vitamins we take, the more money we earn! 

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Hello, World... I'm Chronic Pain

On a scrolling list of frustrating components on my CP journey, confusion is at the top. I’ve never known where to turn for anything. Where do I go to educate myself? What should I read? What else should I plan for? What are the best treatments? Who are the leaders in this community? Really, who’s in charge here?!

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Chronic Spotlight Series - Dr. Robert Katz

I’ll never forget our first visit. By this time, my ever-present optimism had become worn and frail from doctor after doctor, guaranteeing an imminent downward spiral. I had been strongly discouraged from having expectations of living a “normal life,” and I was starting to lose hope. I was close to defeat, exhausted and on the verge of an ugly cry, when after my exam and confirming my initial diagnosis of Fibromyalgia, Dr. Katz looked at me and said, “I can help you get your life back.”

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Chronic Spotlight Series - ElleJay Volpe

Up next, is ElleJay Volpe. ElleJay is the sparkling CEO at Frill-Ability Inc., and an Ambassador at Abilities Expo, as well as avid blogger and host of the podcast, Adaptively Intersectional with Frill-Ability . One look at her Instagram and you’ll see ElleJay’s love for all things pink, purple and frilly - but don’t be fooled - ElleJay puts the “Frank” in Lisa Frank. You’ll see why, in our interview below.

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25 Facts for Fibromyalgia Awareness Day

It’s interesting to me that on one hand, we’ve come so far: Fibromyalgia (FM) has been legitimized, testing has improved, and safer treatments are replacing dangerous meds. On the other hand, there are many who still don’t believe that FM is real. In honor of National Fibromyalgia Awareness Day, I’m sharing some facts for the public. Twenty-five facts that have already proved to represent just what having Fibro is like.

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Proof to Convince a Non-Believer

In 2012, Fibro was recognized as a permanent disability and in 2015, it was recognized by Healthcare providers. Yet, in my ten month journey of writing this blog, I have met hundreds of women and men whose doctors, family, loved ones and employers still don’t believe their condition and think they are “lazy, crazy, making it up, or frankly, just full of crap.”

Let’s put an end to this once and for all.

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16 Secret Side Effects I’ve Kept from my Friends

I’ve kept these secrets because I don’t spend much time talking about the negative impacts of my condition. Honestly, I find that when I do, it’s hard to stop. But, for today, I’m hanging up my armor and letting down my guard. Here are the secrets I’ve kept while living with Fibromyalgia, Chronic Pain, Chronic Fatigue Syndrome and Sjogren’s for the past nine years.

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3 Key Devices to Relieve Chronic Pain

... I slipped into a daydream where I pressed an “Easy Button” and all of my conditions were healed.

As I came back to reality, I looked down to my heating pad and thought it kind of resembled an easy button. And this inspired me to share some gratitude for the great gadgets that give me relief from Chronic Pain.

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Why Getting Fibro wasn’t Bad Luck

I must admit, for years I wondered why the powers that be chose me to have Fibromyalgia, Chronic Pain, CFS and Sjogren’s. The feelings of isolation, pain, being removed from the world and constant testing of new treatments was overwhelming and exhausting. It was impossible not to think, ‘Why me??’ when things got really bad - when my hands were too stiff to hold a spoon and I couldn’t get up a flight of stairs.

Fast forward nine years and truth be told, my illnesses have actually had a lot of benefits to me, my family and my life in general.

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The Ultimate Guide to Online Support

This huge, badass Chronic Pain community has had my back every step of this journey, and guess what? They’re ready to have your back too.

This ultimate list of who shines online covers advocacy, motivation, diet, mantras and the newest treatments in the Chronic Pain world.

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3 Ways I Fight Isolation

I do everything I can to encourage my husband to go out and be social but understandably, it’s hard for him. He sees his wife in so much pain and all he wants to do is sit with me and cheer me up. Who wants to go out with that guilt? Who wants to go out by themselves and constantly get asked the question, “Where is your wife?”

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